My daughter Helen is two years old.
Posted by: Danby | May 28, 2007
Beacause Down Syndrome is an Unbearable Burden on Both the Parent and the Child.
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By: gillibrand on May 28, 2007
at 4:30 pm
You have a beautiful daughter!
My son is almost 18 yrs old, has Down’s Syndrome, and serves at the altar at our Church, which only has the Latin Mass. He knows all the responses and does most everything up there.
Who says Down’s Syndrome children are a burden?!
By: Michael Yoder on May 29, 2007
at 8:51 am
That’s rather the point I was trying to make. The above excuse is used to kill 90%+ of Down’s kids pre-natally. The point of the post is that children with Down Syndrome are children, not burdens.
Besides, she’s really cute.
By: Danby on May 29, 2007
at 10:48 am
She is extremely cute. God bless her.
By: MelanieBett on May 29, 2007
at 7:22 pm
An angel from heaven.
By: mlalexand99 on June 6, 2007
at 12:04 pm
My great-great-grandmother had Down syndrome (“Mongolism” as they called it in her day). As my grandfather described her, she was a shy, quiet woman who was widely considered the best cook in Grays Harbor county, Washington. She never learned to read or write but by all accounts had a happy and fulfilling life. She also taught my grandfather most of what he knew about cooking; his pies were the best I’ve ever tasted, bar none, and he insisted to the end of his life that hers were far better. That, in a nutshell, is what Down syndrome amounted to in a time before the medical industry figured out how to redefine differences as dysfunctions.
By: John Michael Greer on September 30, 2007
at 7:36 pm
i have down sydrome to and i need a little push to keep going can u give me and my mom hope call or email me 1613-659-4955
By: garet on February 4, 2008
at 8:24 am
Hi, Garet. It’s nice to make your acquaintence. Sorry it took so long for a response. I was just surfing trying to find a Catholic Church nearby where the Tridentine (Latis) Mass is said on a regular basis. And, here I find you! What’s the likelihood of that happening? I live in Ohio, near the Cleveland area. I’m getting ready to retire soon – April 30, and I have one son who is not down syndrome. How old are you? Please write back and tell me a little about you and your Mom
By: peggy on March 20, 2008
at 12:25 pm
I have a 9 year old daughter with Down syndrome and Cerebral Palsy. She was never supposed to walk or talk. In 2003, my wife and I separated. At the time, my daughter was not walking, and could not really talk. It was almost a year before I saw my kids again, due to circumstances beyond my control. I was convinced she would not recognize me. As I sat waiting to meet with them in a restaurant, I was shocked to hear, “DADDEEEEE!!!!”, and see my daughter running towards me! These kids are not a burden but a blessing!
By: starbirdcanada on May 8, 2008
at 9:37 am
i have a daugther who is 15months , she is really loving . but am worryed of what the future hope for her
By: gladys on September 13, 2008
at 5:37 am
Gladys, today we live in a very different world than that of a generation ago. No longer are children with Down syndrome shipped off to institutions. They are raised in loving homes with their siblings. Today, people with Down syndrome are capable of holding down jobs, living independently, and some are even going to college! My daughter is 9 years old (that’s my post above – starbirdcanada). Jessica is such an inspiration to me. I am sure that your daughter will have a bright future as she is loved and encouraged!
By: Michael on September 13, 2008
at 11:41 am
Gladys,
Helen is almost 4 now, and I worry about her too. A lot. Still, God does proved, better than we can hope. Helen has become the single most delightful little girl I’ve ever met. So far she has not really been able to form words of more than one syllable and that only sporadically. We decided about six months ago to teach her sign language, and the effect has been remarkable. She has picked it up very quickly (more quickly than I have) and is now able to express herself in a way that’s just been too difficult for her to do verbally. She can tell us what she needs, tell us stories, include us and her sister in her games of pretend.
Having a child with Downs is scary. Very scary. Most of that fear has it’s roots in thinking of the child mainly in terms of Down Syndrome. What we have found is that having Helen about is not scary in the least. It’s wonderful. She’s a delightful, loving, sensitive child, and we would be immensely poorer had she not been given to us. I do think some people push their Downs kids way too hard. If they never live independently, so what? I have only lived independently for one miserable year of my entire life.
By: Danby on September 15, 2008
at 11:43 am
Michael,
I have an 11 year old son with Down Syndrome and Cerebral Palsy. I have been trying to find others with similarly diagnosed children. Apparently the combination of diagnoses is not common. I would like to be able to find a group of such parents that can look to each other for support and information.
By: Karen on November 6, 2008
at 10:53 am
Karen, I could give you my email address and put you in touch with someone. If you want to contact me through my blog, that would be fine.
By: Michael on November 13, 2008
at 2:07 am